My Name is Heather and I am married to Chris and together we have 4 children Mikayla 13, Makenzie 11, Megan 7, and our only boy is Mason 3. I decided to begin blogging because I don't want to forget the sound of my children playing,laughing and singing. This is the soundtrack of my days. Those sounds will someday fade.I am determined to remember all the memories even the ones I would prefer not to:)
Thursday, July 28, 2011
Update on Mason
After a month of waiting I am able to answer everyones questions about the genetic testing. The neurologist ran a series of genetic tests and the results were normal. I was happy to hear those results but my question to her was why are we being sent to a geneticist if they were normal. The answer I received was they have a few more tests they can do and will be another set of eyes. We also are being told to keep going to the developmental pediatrition. From what the doctor is telling me she knows something is going on but with no answers all they can do is treat the symptoms. We know his soft spot is still not closing and the ventricles are larger on the left side of his brain but was he born with them that way or did something happen (maybe when he had meningitis)?? We also went back to the Child Health Specialty Clinic today. Which was good for me since I have many questions and sometimes I feel as if I am running in circles and is what I am doing the best I can do or is it too much! We talked about Apraxia and Autism and we are going to add additional speech therapy. We have made progress in alternate communication using signs and pictures which comes in handy when we can't figure out what he wants. Thank you to everyone who has been praying and thinking about Mason. I know there are quite of few of you who have been waiting anxiously right beside me for these test results and even though I don't have an answer I at least know that you will be right beside me for the long haul.
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